Ehlersdanlossyndrome

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LIVE

#Repost @theokapioandp・・・#repost from @taylers.danlos The okapi is the new EDS mascot. Why? As many

#Repost @faeriebearart (@get_repost)・・・Day 21 of #30DaysofAutismAcceptance writing on co-occurring d

2019: the year I die. #hospice#digestivetractparalysis #gastroparesis #ehlersdanlossyndrome #endofli

Le dentiste ne peut rien faire pour mon problème de mâchoire. À défaut de pouvoir manger une bonne p

#sed #eds #syndromedehlersdanlos #ehlersdanlossyndrome #chronicpain #chronicillness #douleurschroniq

#Repost @world.we.want (@get_repost)・・・It’s Virgo season & to celebrate we have an interview up

#Repost @world.we.want (@get_repost)・・・New interview up: Kiran (@kiranmnigam ) discusses nutrition a

‍♀️‍♀️I’m still not over how beautiful my wall is. Thanks @marsupialpudding for painti

JOY OF JOYS, #ehlersdanlossyndrome subtype testing *finally* achieved. (IT ONLY TOOK MOST OF A FREAK

On my plane, lifting off soon. Asked to have my window seat changed to an aisle seat, because of my

Please enjoy this Potato Post it portrait I did at work today. I do not want to be here. I missed on

New hair who this? #eds #ehlersdanlossyndrome #fibromyalgia #chronicillness #chronicpain #spoonie #z

EDS and a puppy. Its hard to see because most camera software these days are designed to hide flaws

It starts… #floridaweather #floridarain #hurricaneseason #eds #ehlersdanlossyndrome #ehle

I’m not sure what is going on, but the muscles in my knee keep twitching randomly and I ca

The reasons for why the wonderful okapi has been chosen as the new mascot for HSD/hEDS!! Chosen by u

#Repost @perpetual.reflections ・・・ #okapistrong . With this project, we stand for the separation of

Last week, my friend Heather Albright, pictured above with her son Jared, passed away as a result of

karolynprg: This is my whiteout pain face. It doesn’t look as depicted on the pain scale. #Hos

It’s #RareDiseaseDay. Sometimes I don’t know whether I should post on this day because t

#Repost @health_and_unwellness ・・・ #differentaidsfordifferentdays graphoc by @wheely_good_time I lov

TBT the only time a professional has ever taken my photo I am a beautiful flower . . . . . (This is

#Repost @theokapioandp ・・・ #repost from @taylers.danlos The okapi is the new EDS mascot. Why? As ma

#Repost @rarediseasepatient ・・・ Some of us need #narcotic #painmanagement just to live in our own bo

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